Steve
Eidelman has led change in a variety of settings for people with
mental retardation and other developmental disabilities. In 1974
Steve was a graduate student in Social Work Administration at
the University of Maryland in Baltimore. He accepted a yearlong
field placement at the then John F. Kennedy Institute for Handicapped
Children, the first University Affiliated Facility. That experience
changed his life. One year turned to five, and under the watchful
eye of the many excellent faculties in two-dozen professional
disciplines he became “hooked” on the field of services
and supports to people with developmental disabilities and their
families.
As
the Executive Director of The Arc of the United States, the nation’s
largest organization concerned with people with mental etardation
and related developmental disabilities and their families. Steve
has been helping The Arc to focus itself for the 21st Century,
and has helped The Arc relocate its national headquarters from
Arlington, TX to the Washington, DC area. Steve is especially
proud of the joint efforts this year between The Arc and AAIDD.
For the second time, the two associations conducted a highly
successful joint Governmental Affairs seminar in April, with
record setting attendance. AAUAP joined in as an additional sponsor,
presenting one voice for The Arc’s constituents from multiple
perspectives. In addition AAIDD adopted The Arc’s 2000,
2001 and 2002 legislative goals, helping to assure that those
we both serve have the benefit of our combined expertise, passion
and commitment. Now, in collaboration with UCP, The Arc has expanded
the endorsing organizations for the goals as well as jointly
operating the Public Policy Collaboration, sharing resources
and staff on the common legislative goals. He is working on issues
ranging from supporting consumers and families through provision
of information and tools to assist them in obtaining the services
and support they choose, to governance and standards for The
Arc and all the chapters of The Arc.
Beginning
September, 2005 Steve became the first Robert Edelsohn Chair
and Professor in the Field of Services for Adults with Developmental
Disabilities, in the College of Human Services, Education and
Public Policy at the University of Delaware. He is a professor
in the College of Human Services and Public Policy, and a Senior
Fellow at the Center for Disability Studies at the University
of Delaware. One of the things he is the most excited about is
being able to develop leadership training programs for people
who manage in the government and not-for-profit sectors supporting
people with disabilities.
Joanna
L. Pierson, PhD
President-Elect
Joanna
Pierson is the Executive Director of The Arc of Frederick County,
Maryland. Dr. Pierson has a Ph.D. in social work and serves as
an adjunct faculty member of the University of Maryland at Baltimore
School of Social Work. She has received state and national awards
for her leadership in the field. Currently in her second term
as Secretary/Treasurer of AAIDD, Dr. Pierson has served on the
AAIDD Board of Directors since 1998. Past AAIDD leadership positions
include Families SIG chair, SIGN and SIGN Implementation Committees,
Assembly of Regions, Region IX chair, Maryland Chapter Chair
and Treasurer, Social Work Division President and Local Arrangements
Committee Chair. She has presented at numerous state, regional,
and national conferences and has written a book chapter on family
support services.
In
addition, Dr. Pierson served for five years as the Chair of Maryland’s
Developmental Disabilities Council. She was the only developmental
disabilities professional to serve on an appointed committee
developing the 1115 Waiver plan for long term care in Maryland
and was successful in educating the committee about the unique
needs of people with developmental disabilities. She co-authored
Maryland’s successful Self Determination Initiative proposal
to the Robert Wood Johnson Foundation.
At
The Arc of Frederick County, Dr. Pierson initially created Service
Coordination for individuals with developmental disabilities
in 1982 as the first service of its kind in Maryland. She is
extensively involved in systems reform involving services for
people with developmental disabilities in Maryland, and is active
in the leadership of local and national organizations promoting
the interests of people with developmental disabilities.
Michael
L. Wehmeyer, PhD
Vice President
Michael
Wehmeyer, PhD, is Professor of Special Education; Director, Kansas
University Center on Developmental Disabilities; and Associate
Director, Beach Center on Disability at the University of Kansas.
Dr. Wehmeyer is engaged in teacher personnel preparation in the
area of severe, multiple disabilities and directs multiple federally
funded projects conducting research and model development in
the education of students with intellectual and developmental
disabilities.
He is the author of more than 180 articles or book
chapters and has authored, co-authored or co-edited 19 books
on disability and education related issues, including issues
pertaining to self-determination, transition, universal design
for learning and access to the general curriculum for students
with significant disabilities, and technology use by people with
cognitive disabilities. He is past president of the Council for
Exceptional Children’s Division on Career Development and
Transition and is Editor-in-Chief for the journal Remedial and
Special Education. In 1999 Dr. Wehmeyer was the inaugural recipient
of the Distinguished Early Career Research Award from the Council
for Exceptional Children’s Division for Research. In May,
2003 he was awarded the American Association on Mental Retardation’s
National Education award. Dr. Wehmeyer holds undergraduate and
Masters degrees in special education from the University of Tulsa
and a Masters degree in experimental psychology from the University
of Sussex in Brighton, England, where he was a Rotary International
Fellow. He earned his Ph.D. in Human Development and Communication
Sciences from the University of Texas at Dallas.
James
F. Gardner, PhD
Secretary-
Treasurer
Jim Gardner has served as President and CEO of CQL (Council on Quality and Leadership) since 1989. During this time CQL has demonstrated international leadership in the definition, measurement, and improvement of quality of life for people with disabilities. He is particularly interested in issues surrounding quality of life, increasing social capital for all members of the community, and fostering the role of support organizations as bridges to the community for people with disabilities and their families.
He previously served as Vice President for Community Services at the John F. Kennedy Institute at Johns Hopkins University and then Director of the Education Center at the Sheppard Pratt Mental Health System. He began his career in human services in Massachusetts as a unit director at the Walter E. Fernald State School and then served as the first Executive Director of the Greater Lawrence Educational Collaborative.
He earned a Ph.D. in American Studies from Indiana University and received a Joseph P. Kennedy, Jr., post-doctoral fellowship in Medical ethics from the Harvard Medical School. He later received a MA degree in administrative sciences from Johns Hopkins University. This academic training provided background and resources for a reframing of human services that began with his participation and experience in a series of Program Analysis of Service Systems training workshops.
He has taught graduate courses in organization development, organizational theory and design, and leadership at the University of Maryland and Johns Hopkins University and authored over 50 publications in disability services, quality of life, and measurement and evaluation. He has participated in conferences, presented research findings, and promoted a vision of a “world of dignity, opportunity and community inclusion for all people” throughout North America, Europe, and New Zealand, Australia and Taiwan.
Jim Gardner has been a member of AAIDD since 1978. He has served at state, regional, and national level or the organization. He was named an AAIDD Fellow in 2000 and received the Leadership Award in 2004.
David
A. Rotholz, PhD
Past
President
David A. Rotholz, Ph.D.
is the Associate Director of the Center for Disability Resources
(UCEDD) and Clinical Associate Professor at the University of South
Carolina School of Medicine. His professional goals center on high
quality, evidence-based supports for people with intellectual and
developmental disabilities through services, training and research.
His major South Carolina efforts are currently devoted to statewide
system change in positive behavior support and directing a collaborative
grant to evaluate the reliability and validity of the quality assurance
and improvement system used by South Carolina’s MR/DD system.
Dr. Rotholz’s 25+ years of experience in the profession
provide the basis for his current work. These experiences include
work as a direct support professional in the late 1970s as live-in
group home staff and as a classroom teacher for children with autism
(using discrete trial methodology before it became “mainstream”);
consultant to school-based special education programs; clinical
direction of a nationally respected treatment program for children
with autism; teaching, research, and service provision in university
settings; and development and implementation of training curricula
for practitioners who support people with intellectual and developmental
disabilities.
Dr. Rotholz’s recent responsibilities
include research policy advisor to a state MR/DD agency and trainer
to community services
staff, school psychologists, and special educators across the country
in the areas of positive behavior supports and effective teaching
methods for people with intellectual and developmental disabilities.
He has also been an active leader with the AAIDD Psychology Division,
AAIDD Board of Directors and state chapters of the AAIDD and the
Arc. David received his Ph.D. in 1985 from the University of Kansas
and has been an active member of AAIDD since 1992. He became a
fellow of AAIDD in 2002 and became a Board Certified Behavior Analyst
in 2005.
Sandra L. Friedman, MD
Member-at-Large
Sharon
C. Gomez
Member-at-Large
Sharon
Gomez is the Quality Enhancement Officer for Evergreen Presbyterian
Ministries, Inc.; a faith-based, not-for-profit, multi-state
agency providing supports to people with developmental disabilities.
She has a Bachelor’s Degree from Louisiana State University.
She previously served as the Director of Evergreen Presbyterian
Ministries, Inc. Southwest Louisiana Community Services Division
from its inception. She also served as a Program Supervisor for
Evergreen as well as a Court Monitor for the District Court of
Louisiana in the matter of Gary W. et al vs. the State of Louisiana.
Sharon was instrumental in introducing the concept of Person
Centered Planning to Evergreen and has traveled extensively in
the United States teaching people the value of this philosophy
as well as the tool.
She
joined the staff of The Council on Quality and Leadership (CQL)
in 2002 as a Quality Enhancement Specialist. Through her work
with CQL, Sharon has worked extensively with organizations throughout
the United States and most recently in Ireland in developing
person centered approaches to service delivery. CQL is an international
not-for-profit organization dedicated to being the leader for
excellence in the definition, measurement and evaluation of personal
and community quality of life for people with disabilities and
people with mental illness. She has authored a chapter in the
AAIDD Publication entitled Contemporary Issues in Administration:
Leadership and Organizational Excellence; the chapter is entitled “Factors
Defining An Excellent Community Provider” and co-authored
a second chapter in the same publication entitled “The
Partnership of Person Centered Planning and Outcomes Measurement.” She
also co-authored an article that appeared in the March, 2003
issue of Exceptional Parent Magazine entitled, “One Organization’s
Multi-Dimensional Approach to Quality Enhancement. She has held
numerous positions in the American Association on Mental Retardation
including President of the Louisiana Chapter, President of the
Region V Chapter, President of the Community Services Division
of the National Chapter, and a member of the Board of Directors
of the National Chapter on two separate occasions. She became
a Fellow in AAIDD in 2000. In 2003, she was selected as one of
34 individuals who have made the most significant contributions
to enhancing quality of life for individuals with mental retardation
across the 20TH century in a five state area (Louisiana, Texas,
Oklahoma, Arkansas, Kansas, and Missouri.)
Karrie A. Shogren, PhD
Member-at-Large
Karrie A. Shogren, Ph.D. is an Assistant Professor of Special Education at the University of Texas at Austin. Dr. Shogren teaches graduate-level courses in the Autism and Developmental Disabilities program at the University of Texas and conducts research on the development of self-determination in children, youth, and adults with intellectual and developmental disabilities.
She has authored or co-authored more than a dozen articles and book chapters and frequently presents at local, state, and national conferences. Dr. Shogren has been actively involved in efforts to engage and support student and junior members of AAIDD through her work as the co-chair of the AAIDD Ad Hoc Committee on Student and Junior Member Recruitment and Retention. Dr. Shogren received her Ph.D. in 2006 from the University of Kansas.
Marc J. Tassé, PhD
Member-at-Large
Marc J. Tassé, Ph.D., FAAIDD is an Associate Professor at the University of South Florida’s Louis de la Parte Florida Mental Health Institute and Department of Child and Family Studies. He is also the Associate Director of the Florida Center for Inclusive Communities, a University Center for Excellence in Developmental Disabilities (UCEDD). He received his Ph.D. in Clinical Psychology from the Université du Québec à Montréal and then completed a postdoctoral fellowship at the Ohio State University Nisonger Center – UCEDD. He has over 20 years of experience in doing clinical work and conducting research primarily in the area of co-occurring intellectual and developmental disabilities and severe problem behaviors or mental health problems.
Dr. Tassé has over 70 publications in peer-reviewed journal articles, book chapters, and books in the area of intellectual and developmental disabilities and has given over 100 presentations, seminars, and workshops. He is a co-author of the AAIDD Supports Intensity Scale (Thompson et al., 2004) and the AAIDD Terminology and Classification Manual (Luckasson et al., 2002) as well as the current Chair of the AAIDD ad hoc committee working on the development of the Diagnostic Adaptive Behavior Scale.
Nancy Ward
Presidential Advisor
M. Doreen Croser
Executive
Director
Doreen
Croser
became interested in developmental disabilities many years ago
when her younger brother John was diagnosed with multiple disabilities
including mental retardation. Since that time, she has served in
many professional and volunteer capacities in addition to remaining
actively involved in John’s life.
For
the last 14 years, Doreen has been serving as the first woman
Executive Director of the American Association on Mental Retardation.
Joining the Association as a college student and remaining deeply
committed to AAIDD, Doreen works with many national, regional
and local AAIDD leaders in support of our critical mission. AAIDD
is dedicated to improving the quality of individuals with intellectual
disabilities and their families by promoting progressive policies,
sound research, effective practices and universal human rights
in the United States and throughout the world.
Previous
positions held by Ms. Croser include Assistant Director in the
Developmental Disabilities Administration of the Maryland Department
of Health and Mental Hygiene; Associate Director of WRI, Inc.,
a human services consulting firm in New York City; Director of
Region II Developmental Disabilities Training & Technical
Resource Center; Director of Developmental Disabilities Services,
City of Portsmouth, Virginia; Sheltered Workshop Director, Summer
Camp Director, and Special Educator.
She
serves on a variety of boards and is a member of many National
and State committees including the Governor's Developmental Disabilities
Council in Maryland.